The Forgotten Grief: NEWS & CONFERENCES
 Twenty five years ago, when I began as a researcher in this field, I scoured the literature and news back to the turn of the century and found there were only 60-70 significant articles, and very little research. Over that time due to the hard work and concern of many, care for parents is now found in most hospitals or communities, and is available internationally through programs such as SHARE
and HAND. Over 40,000 families each year in this country alone experience the loss of an infant around the time of birth, and the devastating grief which if unsupported can lead to many disguised emotional problems later, often presenting themselves in an unknown aetiology. Below find current News and Conference Listings regarding Perinatal Bereavement. .Email: contact us/add an Item or Listing
UPDATE: JULY 21, 2007
This quarter's articles focus on several states: NY, South Dakota, CA and New Mexico's
Legislative confrontations with the MISSing Angels Act; increased mortality rates due to
poor health care in New Zealand and South Africa, and disease processes as aetiological
factors in stillbirth.
New Study May Help Reduce StillbirthApril 26, 2007
New Study May aid
in Understanding Stillbirth "That $15 million safe-sleeping campaign is credited with a 90 per cent fall in the number of cot deaths over the past two decades. But while SIDS deaths have declined, and while the survival rate of babies in the first 28 days of life has been vastly improved, there has been no fall in stillbirths – the loss of an unborn after 20 weeks."
Heart Monitor Device Reducing Stillbirth?Monday April 16, 2007- The Guardian
Fetal Heart Monitor Reducing Risk
Sarah Boseley, health editor
Stillbirth Rates Which Won't ChangeStaffNurse.com, UK - Apr 26, 2007
Stubborn Stillbirth Rates Confound Experts
"About one in 200 pregnancies ends in a stillbirth and the numbers have stayed the same since the early 1990s. The Confidential Enquiry into Maternal and Child Health reports there were 3,600 stilbirths in 2005 and nearly 1,200 occurred just before women were due to give birth. Another 2,300 babies died in the first four weeks of life. The report says that more than half of stillbirths were classified as unexplained. " Other Links:
Placenta Test May Predict StillbirthMay 2007Test Predicts
Outcome of Pregnancy "Researchers at Mount Sinai Hospital in Toronto have developed a non-invasive test to predict the likelihood of serious complications due to placental damage in women with high-risk pregnancies. This includes women who are hypertensive, diabetic or obese." National Review of Medicine
Obesity May Increase Risk of StillbirthMay 1, 2007
"The study of more than 24,000 Danish women found that, compared with normal-weight women, those who were obese before pregnancy had twice the risk of stillbirth and to have a baby die within a month, according to findings published in the British Journal of Gynecology."
Missing Angels Act-Gov Bill Richardson Ignores PleasPHOENIX, May 4 /PRNewswire-USNewswire
News Release:
Governor Ignores pleas Regarding Missing Angels Act"The MISSing Angels Bill helps provide much-needed comfort, dignity, and
documentation to women and their families experiencing the death of a baby
just prior to or during birth. All states, including New Mexico, require
the family to pay for funeral expenses, and a death certificate/report is
issued after a stillbirth. Yet, some states refuse to offer women the
choice of a birth certificate. It offers an option to women who give birth
to loved and wanted babies who die unexpectedly to choose a birth
certificate.
"I would assume that the last thing a presidential candidate would want
to do is knowingly wound thousands of grieving mothers after their baby's
death," said Daryl Logullo, Legislative Liaison for the MISS Foundation."
TV Stillbirth Stunt Deemed CruelMay 04, 2007 05:32pmStillbirth Stunt:
BB Apology Exclusive by Marcus Casey- CourierMail.com.au TV Show requires a cruel action , showing insensitivity to bereaved mother's needs.
Thanks to Alexandra’s House, no family need grieve alone The founder, who once shunned sick babies, discovered her calling after a niece died.Alexandra House: No Need to Grieve AloneBy LEE HILL KAVANAUGH The Kansas City Star April 16, 2007
This article describes the gap in medical care for terminally ill babies.
Hospice Aids Parents of StillbornsHospices help shared grief
THROUGH HOSPICE PROGRAMS, PARENTS GET HELP IN COPING WITH AN INFANT'S DEATH
By Karen Augé-Denver Post Staff Writer
"there are support systems like the University of Colorado's Fetal Concerns program to help these parents cope. These hospice programs help parents deal with grief and create care plans and even rituals for seriously ill babies. They work with parents on practical issues, such as memorial services, and spiritual and psychological counseling. There are about 40 perinatal hospice programs across the country, according to Amy Kuebelbeck, co-founder of a website for parents, perinatalhospice.org."
Couple Learns From TragedyMarch 28,2007 Couple finds that something positive can come of tragedy
Couple married 9 years form "Jenna's Team" for March of Dimes in memory of their stillborn child.
Controversy About Stillbirth Death
Revelations About Stillbirth Death March 11, 2007 Melbourne Hospital handles the death of stillborn Saoirse as a death, with a coroner's report. Controversy surrounds the choice. "It is also an unprecedented challenge by the court for the State Government to overhaul existing laws. But for Saoirse's parents, Karyn and Andrew Kennedy, it is overdue recognition. "This validates Saoirse's life in the eyes of the Victorian law and means the world to us," Mrs Kennedy said." TheAge.com.au
Taking time to Share Volunteers bring comfort with gowns and blankets for young lives cut shortMarch 11, 2007
A Ministry to Parents of Stillborns Volunteers from SHARE give time and talents in sewing ministries of remembrance for stillborn infants.-Story
December 10th,2006COMPASSIONATE FRIENDS CANDLE LIGHTING DAY
 Candle Lighting Remembrance For the HolidaysOn December 10th, Compassionate Friends invites the lighting of a candle to commemorate loved ones who have died, including children and infants. A variety of services nationwide will be held , as well as private commemorations. Join with them in remembering your child in this tender remembrance during the holidays, the most difficult time of the year for many. December 3,2006Silent Hearts, Big Voices
Silent hearts, big voices: A service for those touched by the loss of a child
By BRENDA WEBER/The Evening News SAULT STE. MARIE A Memorial Service for the holidays is held by Silent Hearts for family members of those experiencing a Perinatal death.
October 22,2006Hundreds Walk in Suffern to Remember Babies
By ALICE GOMSTYN THE JOURNAL NEWS 300 people attended Good Samaritan Hospital's 18th annual Walk to Remember , including an 80 year old mother, remembering a loss from 1947. (Original publication: October 22, 2006)
October 19,2006Northshore Hospital Infant Loss Program Supports "Never Forget" Memorial Day Walk
Never Forgotten Remembering Infants Lost To Miscarriage By April Jimenez 10/19/2006 1:45 pm The Long Island community celebrates a day of Remembrance for families experiencing Perinatal Loss on October 29,2006. Speeches, memorials and interview with bereaved parents
October 15,2006Bereaved Parents Seek Support for Loss
By Melissa Rennie
Times Herald-Record Sullivan Couple works to find resources to begin a support group for parents who experience Perinatal Death: recordonline.com
October 14,2006Welcome to Participants Attending "Winds of Change: Whispers of Hope"
in Chicago at the National Conference.
15th National Perinatal Bereavement Conference Current:2006:The 15th National Perinatal Bereavement Conference
October 12-15, 2006---Chicago, Illinois--- Kathie Kobler, RN, BS -Chair, 15th National Perinatal Bereavement Conference
npbc2006@aol.com
August 17th, 2006-A "Belated" UpdateRed tape denies baby Sonja her brief life
Saturday, July 22, 2006 globeandmail.com Complex medical policies and procedures affect the handling of a perinatal death.
Last Rights: Utah law requiring use of funeral director takes away choices at death by
Alan Choate Daily Herald Utah laws regarding disposition and transportation of bodies make choices and life even more difficult for mourners: case studies including a family experiencing a stillbirth.
Pre-term births are up but fewer newborns die Fri Jul 14, 2006 1:08 PM Statistics from the National Institute of Medicine on the survival of pre-term babies, based upon better care and other factors.
Team approach to Care of Perinatal Bereavement
WCR Staff Writer Edmonton August 16th, 2006 Catholic Grey Nuns describe a team approach to Perinatal Bereavement
Am J Psychiatry (subscription) - USA
Some babies in Ontario unregistered
Report blames fee for skewed stats
If no birth record, then no death record
May 30, 2006. 05:47 AM Article details the concern over 'unregistered' babies in Canada "About 200 newborns a year are unregistered and if they die, their deaths also go unrecorded, says the Canadian Perinatal Surveillance System, a pediatric group that falls under the Public Health Agency of Canada"
State lawmakers weigh recognition of stillborn births
Some see links to abortion issue Press & Sun Bulletin:By CARA MATTHEWS
Albany Bureau Controversies in law such as the issuing of Birth Certificates to Stillborns are discussed in light of differing agendas of parents and lawmakers
Psychiatry
and Post-partum depression Psychiatric Times - Irvine,CA,USA Perinatal Bereavement and mourning discussed in the context of Post-partum depression in general
April 17th, 2006
Classic professional photographer finds depth of healing in non-clinical photographs.
Mother Turns Grief Into Inspiration
One Mother's fight to find meaning in the Loss of a Child
Calling All Angels-news report
CALLING ALL ANGELS
The stillbirth of a baby is a devastating occurrence. When are we going to find out why it happens? And when will we start talking about it?
Suzanne Pullen
Sunday, March 5, 2006
1-2-06
A new look at fathers mourning Stillbirth and neonatal death in subsequent pregnancies.
Upper Chesapeake Health offers Perinatal Group
1-2-06
New on local Parent Group Development
15th National Perinatal Bereavement Conference Current:2006:The 15th National Perinatal Bereavement Conference
October 12-15, 2006
Kathie Kobler, RN, BS Age and Race affect Stillbirth Rates
December 13, 2005
New Research from NY suggests Age and Race correlations with stillbirth rates. First Listing of Fetal Death as a Homocide
January 1, 2006
Grand Rapids Press: Assault on pregnant mother, leading to death of the infant counted a homocide. Pathologist Wants new Diagnostic Rank in Stillbirth January 1, 2006
A British pathologist is suggesting that in addition to autopsy results, medicine would benefit from a 'ReCoDe' ranking, standing for Relevant Condition at the time of Death, noting the degree of in-utero development. Canadian Tribe notes Three fold Preponderance of Male Stillbirths . December 31,2006 A Canadian community examines the reasons affecting the preponderance of males dying at birth. LEGISLATIVE ACTION: THE MISSING ANGELS BILL IN FLORIDA "Important legislation now being considered in
Florida about "Certificate of Birth
Resulting In Stillbirth," known as the "Florida MISSing Angels
Bill?"A dad,Daryl Logullo, at http://www.MissingKate.org,772-633-0972-
who lost his daughter in May, at 35 weeks, is leading this
effort in Florida.
Title taken from "The Forgotten Grief" published in American Journal of Orthopsychiatry, 1982.
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